November is National Family Caregiver Month and the
Alzheimer’s Association recognizes the more than 11 million Americans, including 198,000 in
Wisconsin, who are currently providing unpaid care for a person living with Alzheimer’s and dementia.
 
“November is a month in which we not only honor Alzheimer’s and dementia caregivers, but highlight
unique challenges of their caregiver experience,” said Jennifer McAlister, Program Manager,
Alzheimer’s Association Wisconsin Chapter. “Caregiving demands are often greater for these caregivers
and there are 4 key reasons why dementia caregiving is more challenging.”
4 unique challenges for Alzheimer’s caregivers:

  1. Caregiving for someone with memory loss is more complex and time-intensive:
    Caregivers of people with dementia report providing 27 hours more care per month on average
    (92 hours versus 65 hours) than caregivers of people without dementia. These caregivers are
    often managing multiple conditions, not only memory loss, but behavioral/emotional changes
    and gradual loss of mobility.
  2. Caregiving Impacts Employment
    Caregiving has a significant impact on working caregivers. 57% reported needing to go in late or
    leave early due to care responsibilities, 18% reduced their work hours and 9% gave up working
    entirely.
  3. Alzheimer’s caregivers often have to provide care over a longer period of time
    During the course of a journey with dementia, caregiving tasks escalate and become more time-
    intensive. The average life expectancy following a diagnosis is 4-8 years, but can be as long as
    20.
  4. Alzheimer’s caregivers report greater stress and personal health problems
    59% of Alzheimer’s caregivers report their emotional stress as high or very high and 35% report
    declining health because of caregiving.

“Caring for someone with Alzheimer’s is overwhelming for many caregivers here in Wisconsin,” said
McAlister. “However, there is support and resources available including local support groups, education
programs and our 24/7 Helpline. No one should face this disease alone and the Alzheimer’s Association
is here to help.”
Caregiving Statistics:
 More than 11 million people in the U.S. are providing unpaid care to a person living with
Alzheimer’s or dementia; 198,000 in Wisconsin.
 Among primary caregivers of people with dementia, over half take care of their parents.
 Approximately two-thirds of caregivers are women, and one-third of dementia caregivers are
daughters.
 Approximately one-quarter of dementia caregivers are “sandwich generation” caregivers,
meaning they care not only for an aging parent, but also for children under age 18.
 In 2021, the lifetime cost of care for a person living with dementia was $377,621.
o 41% percent of caregivers have a household income of $50,000 or less

About the Alzheimer’s Association ®
The Alzheimer’s Association is a worldwide voluntary health organization dedicated to Alzheimer’s
care, support and research. Our mission is to lead the way to end Alzheimer’s and all other dementia —
by accelerating global research, driving risk reduction and early detection, and maximizing quality care
and support. Our vision is a world without Alzheimer’s and all other dementia ® . To learn more about
Alzheimer’s disease and other dementia and find local support services and resources, visit alz.org/wi.

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